Cushing’s Syndrome
Association for Cushing’s Treatment and Help
We are a support group for people suffering from all forms
of Cushings syndrome
The Association is patient-led and patient-run, sensitive
to the needs of Cushings patients.
OBJECTIVES:
- Patient-to-patient contact and support, and finding
sources of counselling for individual sufferers.
- Patient-led identification of the things that sufferers
need from their carers, to inform the caring proffessionals.
- Patient-guided production of written information for
suffers, in co-operation with medical advice. For example,
an information booklet for newly diagnosed patients.
- Information sheet for the families of sufferers to
help them manage the impact on family life.
- Individuals accounts of the illness.
- Information sheets relating to post operative conditions
and medications.
- A Newsletter.
THE SET UP
The Association was started in October 1993 with the help
of the Endocrinologist, Dr Chris Burke.
The Coordinator is progressively supported by a network
of Regional Coordinators who will be beat placed to put
individual people in touch with each other. Each coordinator
keeps in touch with their area. They will meet or correspond
as a forum for exchanging feedback on the needs of members,
and coordinating the Association written information, with
technical advice from a small medical advisory group. A
small Management Committee will take the responsibility
for fund-raising from the shoulders of the coordinators.
The Association is self funded by an annual membership fee.
MOST IMPORTANTLY - Ring the Association for Cushing’s
Treatment and Help on 01628 670389, regardless of your personal
situation we will help you.
Association for Cushing’s Treatment and Help
Coordinator: Miss Elaine Eldridge
Telephone: 01628 670389
Fax: 01628 415603
Email: cushingsacth@btinternet.com
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